Sunday, June 24, 2012

MRI results

Kendall's MRI was on Thursday.  It was a long day to say the least!  The radiology department was running a few hours behind.  Luckily, Kendall slept for most of the delay.  She did great for her MRI and was bright eyed and ready to go when I got back to recovery to see her.  What can I say, my girl loves her propofol!  Who can blame her?

Thursday night after I was already in bed, her oncologist emailed me with the results.  He still had to get a hold of the urologist and neurosurgeon to get speak with them about it, so I was hesitant to get too excited quite yet.  This afternoon I was able to speak with her oncologist about everything.

I'm going to break down the results based on the area scanned so that I can use words I've never been able to use before with Kendall.

Abdominal tumors- STABLE

Pelvic tumors-  STABLE

Spinal tumors- Cervical tumor which was removed in November has started to grow back.  Her cord is not compressed yet.  We knew when we got this taken out that it would grow back, we were just hoping it would take many many years.  We are still waiting to hear from the neurosurgeon to see what he wants to do.  Basically, it would just be whether he wants to scan again in 60 days or wait longer than that.  We will just have to watch it.

Her left kidney seems to have gotten worse.  It is significantly more dilated then last time.  Since we had her bladder removed, both of her kidneys have continued to get smaller and better.  This is the first time it has changed for the worse.  She does have bilateral kidney infections again but this would not cause the kidney to be more dilated.  There may be some scar tissue built up in her ureter or her stoma that is causing the kidney to no be able to drain adequately.  This could be fixed by just redoing her stoma.  Something we hate to have to do but is SOOO fixable.  We like fixable problems!!  Kidneys are fixable!  Tumors are not.

Overall we are very pleased with the results.  I think we are getting close to spreading her scans out over longer periods.  We will just wait and see what the urologist says about her kidneys.  We may need to go back down for an ultrasound sooner than later.

On another Matt set up Kendall's big girl bed.  She's been sleeping on the mattress on the floor while we've waited for her new bed to come in.  I use the term sleeping when really I mean screaming, playing, causing no one to sleep:)  Here is the picture of her new big girl bed.

Wednesday we go to Riley for a sleep study to try to see if there is any medical reason why Kendall is not sleeping at night.  We need to make sure we cover all of the basis.

Last but not least, if you are interested in seeing the most amazing webpage in the world, click here.  Next click the donate or register button:)  Kendall's Army is looking rather pathetic compared to last year.



  1. STABLE! Great to read that here! Sorry that Kendall's spinal tumor is growing again though - will they just keep on cutting it out? As ever precious Kendall is covered by my prayers for healing and happiness. Thinking of you all from the U.K.

    Nigel xxx

  2. Haven't heard any news in a long time. Wondering how the sleep study went and if they were able to be of any help. My heart goes out to all of you concerning your sleep. Continuing to pray for Kendall, Braden and all the family