Sleep, where or where are you?!

As you can probably tell from the title, Kendall is still not sleeping well at night.  I think she is waking up so much that it is actually effecting her during the day.  In the past, she would stay up until 12:30 or 1 before going down for her afternoon nap.  The past week, she has been asking to go down for a nap by 10:30.

I'm still waiting to hear back from neurosurgery on the date of her surgery.  I'm actually not losing sleep over this.  I'm not too anxious to get this one on the books.  We did get her MIBG scheduled.  It will be on March 20th/21st.  I hope I made the right decision in doing this extra scan.

Here is a video I shot last week while it was warm out.  Kendall loves going outside and riding down the driveway into the street.

Here is another one of her last Friday when we went out for pizza.  If you notice halfway through, she turns towards me and spits everything out.  It was pretty funny watching her pick up that pizza like she eats it everyday.  It is very rare that she takes this kind of an interest in food.  Excuse the over excitement we exhibit here but this is our life with Kendall.  The normal things become the miracles that we live for.

Tonight I took Braden to go see the movie "The Lorax".  I highly recommend it to everyone.  It was heartwarming to say the least.  I have to say that the quote that inspires the movie is one that I needed to hear tonight.  "Unless someone like you cares a whole awful lot, nothing is going to get better.  It's not." 

Love,

Steph