Monday, March 5, 2012

Sleep, where or where are you?!

As you can probably tell from the title, Kendall is still not sleeping well at night.  I think she is waking up so much that it is actually effecting her during the day.  In the past, she would stay up until 12:30 or 1 before going down for her afternoon nap.  The past week, she has been asking to go down for a nap by 10:30.

I'm still waiting to hear back from neurosurgery on the date of her surgery.  I'm actually not losing sleep over this.  I'm not too anxious to get this one on the books.  We did get her MIBG scheduled.  It will be on March 20th/21st.  I hope I made the right decision in doing this extra scan.

Here is a video I shot last week while it was warm out.  Kendall loves going outside and riding down the driveway into the street.
video

Here is another one of her last Friday when we went out for pizza.  If you notice halfway through, she turns towards me and spits everything out.  It was pretty funny watching her pick up that pizza like she eats it everyday.  It is very rare that she takes this kind of an interest in food.  Excuse the over excitement we exhibit here but this is our life with Kendall.  The normal things become the miracles that we live for.

video

Tonight I took Braden to go see the movie "The Lorax".  I highly recommend it to everyone.  It was heartwarming to say the least.  I have to say that the quote that inspires the movie is one that I needed to hear tonight.  "Unless someone like you cares a whole awful lot, nothing is going to get better.  It's not." 

Love,
Steph

4 comments:

  1. How sweet. Kendall was so cute when she wanted her face and hands wiped....good way to show you. I would have been excited at her interest in the pizza. I wish she was able to sleep more at night. I know how rough it is on everyone in the family.

    Steph, remember Kendall is a fighter because of the strength you show her. She proves everyday how much she wants to win. I know the decisions are getting harder, but follow your heart and know God will lead you to what is right for her. We are all here flooding the gates of heaven for sweet Kendall. She is so special. LOVES AND GOD BLESS!!

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    1. Thanks Jina! Just knowing that so many people are cheering her on and praying for her helps us get through the exhausting days and nights.

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  2. Love the video clips of precious little Kendall - she melts my heart :o) Especially impressed by the way in which she ends her pizza experience by beating on it with her fork, then upending her plate and its contents on to the table top... Go Kendall! ;o) Continuing to pray hard for her and you all from the East of England. Sending out healing wishes and happy hugs her way as ever. Thinking of you all.

    Nigel XXX

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  3. Debby Mooney - C.O.L.E. Prayer TeamMarch 6, 2012 at 7:15 PM

    I love the videos! The pizza video was funny, I love how she looks your way and gives you that big smile at the beginning (something tells me this girl has had her picture taken a few times, LOL!) Thank you so much for sharing the videos, they give us a little glimpse into the Kendall everyone knows and loves. My prayers are with her and all your family, God Bless.

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