Thursday, March 1, 2012

Good News at last!

I got the call about the urine when  I was on my way to work last night.  Her HVA/VMA levels are down.  They are still not normal but they are down!  Down is the way we want them to go.  Up would mean more chemo.
Despite the fact that they are down and it is pretty certain that her cancer is either gone or controlled, the oncologist is still recommending one more MIBG in the next 2 weeks.  AFter that shows now reactive tumors, we will move to urine testing less frequently and MIBG's less frequently.  Matt and I still have to talk about what we want to do.  It is such a hard decision to make.  I'm not 100% convinced she needs the test but I do trust her oncologist.  

I still haven't heard about her cdiff test yet.  I forgot to ask about it last night.  I'm hoping with fingers and toes crossed that it is negative.  I'm a little confident it may be because they would have addressed it last night if it had been positive.  

So overall we have good news to celebrate.  No chemo is always a wonderful thing to hear.  We are also going to start a new medicine to try to help with sleep, and nerve pain.  It may be able to replace a few of her meds and has less harmful side effects.  I have to wait until we go back down to Cincinnati to get it from their pharmacy.



  1. I am so happy for good news. She is always in my prayers. But I agree what a great birthday present. Joyce

  2. So glad to hear some GOOD news!!!! I haven't had as much time to keep up with Kendall lately, but now that the move is done I hope to be able to do better. I'm also praying that you get some sleep...I don't know how you do it, Steph. You're amazing.