Saturday, April 28, 2012

Day 3 Post Op

Sorry I was not able to update yesterday.  We were in ICU most of the day and then finally got moved to the floor around 4:30.  The good news is that the less time I have to update this, the better Kendall is doing.  She's ready to be entertained!!
Her pain medication is completely off.  We are just doing an as needed schedule right now.  She hasn't had any fentanyl since yesterday around 4.  She also has her brace.  To say she hates it would be an understatement.  She will raise her arms for me to hold her and when I get her brace to put on, she quickly changes her mind and decides she doesn't want to get up anymore.  It makes it so hard because I want to hold her so bad but I hate putting her through the pain of putting the stupid brace on.  It still needs some adjustments done but the Brace Shop is closed over the weekend.  They may be coming in sometime but most likely it will be Monday.
Here is a video I shot of her post IV valium that we gave her for muscle spasms.  My girl loves her valium.
video

Last night Kendall slept much better.  Our interruptions were mostly kept to a minimum.  Last night my friend Jill, who lives down here, was able to come and help entertain Kendall while I got the room set up and ate dinner (finally at 9:30)!!  It was a very busy night.  Of course she was up bright and early at 6 this morning.

Braden and Matt are coming down today.  Braden is staying the night at his friend Jesse's house tonight and he is VERY excited about that.  I'm hoping that they will kick up out on Monday.  I can't see why we would need to stay any longer.

If you all could please pray that Kendall becomes more comfortable with the brace, that would be very much appreciated.  Also pray that I become better at getting it on in a timely manner.  It is big, bulky, and uncomfortable.  I think it will definitely cramp our style for the next 6 weeks.  If anyone can learn to manage it, Kendall can.


We also are working hard with Kendall's palliative care doctor to figure out a solution for her frequent screaming at night.  We have taken away a med and added another.  Last night she seemed to be more restful than before.  We won't see the full effects until we get out of this environment, but I'm cautiously optimistic.

Thanks for checking up on us!!
Love,
Steph and Kendall

3 comments:

  1. I am soo glad Kendall is doing well!!! I have NO doubt she hates that brace!! YUK!!! I pray she gets used to it SOON!!

    The video is precious!!!

    ♥♥ Love ya!! ♥♥
    C.O.L.E.'s Foundation
    (Caring Openly, Loving Eternally
    www.colesfoundation.org
    www.colespages.org
    The symbol for childhood cancer is the gold ribbon
    Email: sandy@colesfoundation.com
    Sandy Daron

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  2. Thanks Sandy! The brace is pretty bad. She just looks at it and screams:(

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  3. I have been reading up on little Kendalls story- I hope she can get used to the brace soon. I can't imagine how frustrating that must be for her not to understand. And for you to not be able to hold her.

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